openDemocracyUK

Act now to keep your medical records private

Pam Giddy
21 May 2010

The new coalition government has committed itself to rolling back state intrusion, with plans to scrap the ID card scheme, the National Identity Register, and the ContactPoint database. 

Meanwhile, Connecting for Health is trying to push us past the point of no return by uploading a critical mass of medical records to the Summary Care Record.

This represents a serious threat to medical confidentiality. Your health record would be accessible to literally hundreds of thousands of people - not just those directly responsible for your care.

But it's not too late to put a stop to it - ask your new MP to tell the Secretary of State for Health, Andrew Lansley, to put an immediate stop to data transfers to the Summary Care Record pending a full enquiry.

The "accelerated roll-out" of Summary Care Records is not about patient care, but is rather a blatant attempt by CfH to preserve a heavily-criticised, extremely costly IT programme that - on the evidence of two independent studies - delivers few of the claimed benefits. 

What it does deliver is a complete and total invasion of privacy, which is next to impossible to opt-out of. 

Help us stop this before it's too late.

Ask your new MP to tell Andrew Lansley to halt the uploads now.

Stop the secrecy: Publish the NHS COVID data deals


To: Matt Hancock, Secretary of State for Health and Social Care

We’re calling on you to immediately release details of the secret NHS data deals struck with private companies, to deliver the NHS COVID-19 datastore.

We, the public, deserve to know exactly how our personal information has been traded in this ‘unprecedented’ deal with US tech giants like Google, and firms linked to Donald Trump (Palantir) and Vote Leave (Faculty AI).

The COVID-19 datastore will hold private, personal information about every single one of us who relies on the NHS. We don’t want our personal data falling into the wrong hands.

And we don’t want private companies – many with poor reputations for protecting privacy – using it for their own commercial purposes, or to undermine the NHS.

The datastore could be an important tool in tackling the pandemic. But for it to be a success, the public has to be able to trust it.

Today, we urgently call on you to publish all the data-sharing agreements, data-impact assessments, and details of how the private companies stand to profit from their involvement.

The NHS is a precious public institution. Any involvement from private companies should be open to public scrutiny and debate. We need more transparency during this pandemic – not less.


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