NHS campaign guide - Privacy and medical information

‘Big Data’ is big news (and big money) in the NHS with campaigners asking ‘whose data’ and ‘transparent to whom’? One of OurNHS's key NHS campaigns

10 December 2013

Read OurNHS stories about medical data and privacy here and openDemocracy stories on broader issues of technology and privacy here, or see links on the right.

The Health & Social Care Information Centre’s website is here.

Medconfidential, campaigning for better confidentiality of medical records, is here.

Dr Neil Bhatia has compiled a brief overview of his concerns here, a more detailed outline of his concerns here and here and an opt out form which you can download and hand into your surgery, here.

A Labour MP has tabled an Early Day Motion which MPs can sign, calling for the care.data upload to be halted, here.

Pulse (the GP magazine) regularly runs stories on care.data here (registration neccessary).

Find other campaigning tips on our 'Resources - Campaign tools' page here.


Find this useful? Please donate to OurNHS here to help keep us going - we rely on reader donations for our work.

Had enough of ‘alternative facts’? openDemocracy is different Join the conversation: get our weekly email


We encourage anyone to comment, please consult the oD commenting guidelines if you have any questions.
Audio available Bookmark Check Language Close Comments Download Facebook Link Email Newsletter Newsletter Play Print Share Twitter Youtube Search Instagram WhatsApp yourData