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Older women living with HIV in the UK: discrimination and broken confidentiality

Women accessing HIV care services in the UK report being told to use separate cutlery, being refused help to shower, and having visitors being told by care workers not to associate with them.

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WomenlivingwithHIVUKNov2016(1).jpg
WomenlivingwithHIVUKNov2016(1).jpg

Women living with HIV in the UK. Image: The Salamander Trust

“We're worried about care homes for people with our disability. In other words they will mistreat you.” Workshop participant

As life expectancy grows, more of us can anticipate needing some kind of care in our older age. Worry over such potential future care is not uncommon. This can be fears generated by terrible stories in the media about poor treatment in residential care homes. Or worry over burdening family and friends. Concern over the costs of care and how they might be met loom large. Some though face additional cause for concern, particularly those living with stigmatised conditions such as HIV. In recent years, increasing evidence has emerged both of discriminatory treatment of people living with HIV in residential or domiciliary care, and of the fears that many people living with HIV have over facing this in their future.